Second in our summer -recap series is another memorable special needs child care program, the 2014 World Conference of the Tuberous Sclerosis Alliance. The TS Alliance is another valued long-time client; and an organization we are proud to work with.
Tuberous sclerosis complex (TSC) is a genetic disorder that causes non-malignant tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. The TS Alliance is the world’s leading resource for individuals and families dealing with TS.
This year’s program was held in Washington DC. July 3rd through 6th (yes, another big one over the 4th of July weekend!). It was an extra-special occasion because this year marked the first official World TS Conference – earlier programs had been referred to as National Conferences. This expansion reflects the both the vast expansion of information-sharing worldwide over the past few years, as well as dramatic improvements in clinical care and approved treatments for TS. The TS Alliance is to be commended for it’s continuing and ever-expanding outreach, education, and support.
The conference, held at the beautiful Omni Shoreham attracted more than 1,100 attendees from across the globe, including families and individuals with TSC; caregivers; healthcare professionals; researchers; a wide array of exhibitors; and others interested in TSC. CKE had the privilege of caring for 80 children at this program, many of whom are affected by TS, and others who joined as siblings. The childcare program was organized into two camps, each featuring staff and activities appropriate to the individual attendees. This type of programming ensures every child enjoys a memorable and rewarding camp experience.
If your life has been affected in any way by Tuberous Sclerosis, we encourage you to vist the TS Alliance site to learn more.